Hello! I know its been a long time since I’ve been on here but I have good reasons. The last time I talked to you guys was about 4 months ago, a lot has happened in four months. Life has been amazing, wonderful, hard, overwhelming, but it’s also been a learning experience.
So let’s just start around the end of November. As you know I am a 16 year old girl and I have a nerve disorder called CRPS ( Complex Regional Pain Syndrome). It is also now known as the “suicide disease” because it is the most painful disease known to humans. I have it from my hip down to my toes on my right side. It’s like my leg is being crushed by a truck and my body is on fire most of the time .
But, in Novemeber my leg started to feel weaker and go numb more than it usually does. I kept feeling like something was off. This disease caused me to get paralysis from hip down on my right side. I tried not to focus on my leg but then on Decmber 18th, 2018 I had my second episode of paralysis.
I was at school and then I couldn’t feel or move my leg from the hip down. I was scared but I knew it was coming because of symptoms I’d had in the past. I couldn’t walk. my leg was just dead weight on me causing me more pain.
I went to the doctor, and I was told there was nothing they could do to help me again. I was upset and then I had to be put in a wheelchair because I had no functioning. I spent every moment of my life trying so hard to not have to be put in a chair but it happened. I was devastated but I understood they couldn’t do anything.
We didn’t know when or if I would ever be able to move or feel my leg again and, it was heartbreaking. To have to come to terms that there was a chance I would never be able to walk again took strength I didn’t have. But with my family and friends and church family they gave me the strength and hope I had lost back. So now about a month and a half later and a lot of prayers I’m getting better.
I am still in a wheelchair but I can now feel and move my leg from the knee up. It is tremendous progress that has taken a lot of work. I’m so grateful that I’m getting better. I’m not in public school right now so I can focus on my recovery. So hopefully, God willing, in the next few months I will be back on my feet walking!
I’ve learned so much over the past few weeks. I was upset at first but now I’m happy this happened. Its taught me to appreciate everything. Even things that don’t seem like a big deal, and never take them for granted!
Thank you for all the prayers! I love all of you ! If you have any questions please leave a comment !!