Hello! My name is Phoebe Phelps and I am 15 years old. > I’m from a small town called Ceredo, West Virginia. This blog will be about my life living with CRPS as a teenager! This post is to inform you about my disease! The next will be about I live with it in everyday life.
Complex regional pain syndrome (CRPS) is a really rare chronic (lasting greater than six months) pain condition that most often affects one limb (arm, leg, hand, or foot) usually after an injury. CRPS is believed to be caused by damage to, or malfunction of, the peripheral and central nervous systems. The central nervous system is composed of the brain and spinal cord; the peripheral nervous system involves nerve signaling from the brain and spinal cord to the rest of the body. CRPS is characterized by prolonged or excessive pain and changes in skin color, temperature, and/or swelling in the affected area (www.ninds.nih.gov).
It is prolonged severe pain that may be constant. It has been described as “burning,” “pins and needles” sensation, or as if someone were squeezing the affected limb. These are some symptoms of CRPS:
- changes in skin texture on the affected area; it may appear shiny and thin
- abnormal sweating pattern in the affected area or surrounding areas
- changes in nail and hair growth patterns
- stiffness in affected joints
- problems coordinating muscle movement, with decreased ability to move the affected body part
- abnormal movement in the affected limb, most often fixed abnormal posture (called dystonia) but also tremors in or jerking of the limb.
I got that list of symptoms from http://www.ninds.nih.gov
This blog is to help inform people and help them understand! Sorry for the short entry but I will be posting again soon!
Thanks for joining me!
Good company in a journey makes the way seem shorter. — Izaak Walton