CRPS on the first day of sophomore year!

     Today was my first day of sophomore year in high school ! Even though it is a very big struggle I do go to public school. When I woke up this morning I was excited but I was in complete pain. My leg was tingling, and it was just overall hard to move because it felt like pins and needles all over my body.

      I got up , eventually, and got ready just like any other normal teenager. Once my family and I were in the car I started getting stressed and anxious about seeing everyone again. I  have numbness and paralysis in my right hip down to my toes so I use a cane to help me walk. I prayed to God for the strength to get me  through today and give me peace. He answered my prayer.

   I know it might not seem like it, but it’s very overwhelming to go to highschool with a cane especially because, 1. I physically dont look like I need it, and 2. I know people are going to talk because I look healthy.

    I had multiple people give me weird and nasty looks just because they are uninformed. I had people tell me ” you just want attention, you really don’t need help walking.” I try and ignore them because I know what they say isn’t true , but sometimes it still hurts.

    Sometimes its hard because people want to hug me and talk while standing. Somdays I’m in so much pain I can’t be touched, my light weight clothes hurt my body. On the McGill Pain Index CRPS is ranked more painful then childbirth. People just dont understand.

  As the day went on my pain got worse but I stuck through it, and made it till the end of the day. I want people to understand I am a normal kid. Some things , like school, is just a hard challenge. But it wont stop me.

My first blog !!

     Hello! My name is Phoebe Phelps and I am 15 years old. > I’m from a small town called Ceredo, West Virginia. This blog will be about my life living with CRPS as a teenager! This post is to inform you about my disease! The next will be about I live with it in everyday life.

     Complex regional pain syndrome (CRPS) is a really rare chronic (lasting greater than six months) pain condition that most often affects one limb (arm, leg, hand, or foot) usually after an injury.  CRPS is believed to be caused by damage to, or malfunction of, the peripheral and central nervous systems.  The central nervous system is composed of the brain and spinal cord; the peripheral nervous system involves nerve signaling from the brain and spinal cord to the rest of the body.  CRPS is characterized by prolonged or excessive pain and changes in skin color, temperature, and/or swelling in the affected area (www.ninds.nih.gov).

    It is prolonged severe pain that may be constant.  It has been described as “burning,” “pins and needles” sensation, or as if someone were squeezing the affected limb. These are some symptoms of CRPS:

  • changes in skin texture on the affected area; it may appear shiny and thin
  • abnormal sweating pattern in the affected area or surrounding areas
  • changes in nail and hair growth patterns
  • stiffness in affected joints
  • problems coordinating muscle movement, with decreased ability to move the affected body part
  • abnormal movement in the affected limb, most often fixed abnormal posture (called dystonia) but also tremors in or jerking of the limb.

I got that list of symptoms from http://www.ninds.nih.gov

This blog is to help inform people and help them understand! Sorry for the short entry but I will be posting again soon!